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Latest Podcast
Rare Disorders - Spina Bifida and Hydrocephalus
November 2009
A parent's experience of having a child with spina bifida and hydrocephalus.
For more information and support for these conditions, please call our freephone helpline on 0808 808 3555.
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As part of our 30th anniversary celebrations, we asked 30 families from across the UK whose children are affected by a range of disabilities to tell their story. We wanted to give parent carers a voice to talk about their achievements, acknowledge the challenges, reflect on their aspirations and fears for the futures, and above all to celebrate their family life.
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