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Latest Podcast
Rare Disorders - Proximal Focal Femoral Deficiency
October 2009

Proximal Focal Femoral Deficiency is an uncommon condition which occurs before a baby is born. The condition affects the bones in the lower limbs including the hip, knee and thigh bones.

This podcast is a mother’s experience of having a son with the condition.

For more information and support for Proximal Focal Femoral Deficiency, please call our freephone helpline on 0808 808 3555.

Listen to the podcast:



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As part of our 30th anniversary celebrations, we asked 30 families from across the UK whose children are affected by a range of disabilities to tell their story. We wanted to give parent carers a voice to talk about their achievements, acknowledge the challenges, reflect on their aspirations and fears for the futures, and above all to celebrate their family life.

As the stories show, families with disabled children are just like other families. They are making an enormous contribution to society and all they want is a little understanding from decision makers, budget holders and professional. They would also like recognition from society for the unique gifts and talent that their children bring - because of their disability.

Read the report and please share it on Facebook using the button below.

A huge thank you to all the families for sharing their stories.

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