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Flickr pictures by Cystic Fibrosis Foundation | Showing 8 photos within the 2009 GREAT STRIDES Lafayette set
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Cassandra McKernan i'm twenty and have Cystic Fibrosis, very healthy i may add :) i'm proud to be this healthy and not ashamed of what i have! and i wouldn't have gotten this far without my mom :) i just got home from getting a tattoo, its in my display pic... i do what i can because i know some ppl can't ♥
Elizabeth Kempton
Well tomm. my son goes for his second sweat test. Now that I have read others post I feel a little bit better. My son is 3 years old and he was 7 weeks permature. He really didnt have any issues at birth but eating. At 6 months he got RSV and was hospitalized for only 1 night. Last April he started puking and he would ...puke over the summer until about Sept. This year it started in April and now it has not stopped. He coughs all the time but since our family has a history of Astma they thought it was it. About a month ago he got croup and ear infections they treated that and it continued. He has been on two antibotics and two doses of steriods and nothing has helped with his cough or anything. On Tuesday is when is doctor sent us for the test. On Friday one level was hig so we go again tomm. Wish us Luck. Thanks everyone for the support.Read more
Beth Butters
I'm 44 years old with cystic fibrosis. My story is kinda of unique. I have only had problems in my right lung. No digestive problems and left lung clear.
Doctors said they have never seen a case where only one lung has been infected and my surgeon recommended removing my right lung. That's been six years ago, remov...ed right lung and feeling great but the damage is infecting my left lung now and just starting to have problems. Has anyone out there had problems in only one lung or living on one lung and how is your breathing?Read more
Doctors said they have never seen a case where only one lung has been infected and my surgeon recommended removing my right lung. That's been six years ago, remov...ed right lung and feeling great but the damage is infecting my left lung now and just starting to have problems. Has anyone out there had problems in only one lung or living on one lung and how is your breathing?Read more
Russ I have a brother in law currently in the hospital due to a ruptured vessel in his lung from his CF. Durring the operation there were complications and he had a major stroke. He just turned 41 last Tuesday.
James Stanley My name is James Stanley I have a daughter that has CF she is 16 old and am glad we can talk with other people that is going though what we are.
Kristi Moats I am 27 years old, with CF, and I am going in December to be evaluated for a lung transplant. I have a very strong feeling that they are going to put me on the list. What my husband and I are really worried about are the finances. Does anyone know any programs out there that will help with expenses??
Susie Manzanares Does anyone have the G542X mutation.
Jessica Wood
Hey everyone i have not been on here in a while but i was wanting to update my status with the whole lung transplant thing i have to meet with th phycologist tuesday and from there i will be activated on the transplant list and then it is just a matter of waiting on my lungs i am so excited but also very nearvous I am... currently at Duke University awaiting my lungs there is a great church up there that has let us stay in there donated Home it is amazing to know all the wonderful ppl up thereRead more
Gina Smith We are meeting with cf dr tues. what do we need to ask if our daughter does have cf.
Kelly Geist Like many, I'm anxious to find someone who has the same mutations as my children. They've got the classic Delta F508 along with a 3 pack wildcard: R74W, V20M & D1270N. All 3 of the "wildcard" are supposedly mild to moderate mutations. Hoping for a response...
Scott Huth
Hi there Im 19 years old and about to study at university I have horrible digestive problems but fantastic lungs. My sympathy goes out to mothers having to deal with their child going through this but it does get easier. Technology nowadays have improved dramtically since when my mum got the news I had CF. Also i can't... imagine life without the support of family and friends around me esp the ones closest to you who have to watch and do the hard nagging to get you to do the treatments!! It makes life so much more rewarding and special when you have a great day so hang in there!!!!!!! LindaRead more
Jimmy Lee Johnson It is possible some CF patients only have digestive problems or respiratory problems - some have both. My son Jarrod had both - he passed away 2/3/2001 after battling for 21 years. I know how you feel. My son was diagnosed at approx. 22months age.
Amy Kirkland Thomas I have a 2 month old daughter with CF who is only showing digestive problems so far. I was wondering if anyone could tell me at what age children normally start showing lung issues. I think I'm still in denial that anything is wrong with her since she seems so normal!
