
Madeline Mccraieg does any1 else find that their children have got lots of energy considering they suffer from a chromosome deletion

Cheryl Mcgrath hi im cheryl i have a daughter with partial deletion of chromosome 3, would love to speak to anyone in a similar situation but especially chromosome 3.

Maz
Special needs child and maintaining your relationships - Introduction : Check It Out : Couple Connec
Source: thecoupleconnection.net
Information for couples on affairs, jealousy issues, dealing with a cheating partner and trust in a relationship. Find out more about why people flirt and fancy other people.

Lucinda Richardson Nicole, I'm a proud mother of Joshua who has Tetrasomy 9q. Feel free to contact me. Look me up on facebook and make a add as friend request! I've been looking for similar contacts too and just opened my facebook account!

Nicole McDougal Hello All- I would like to get in contact with anyone that has been affected by a chromosome 9 disorder.

Madeline Mccraieg cathan-peter went 4 an operation 2 correct his droopy eyelid (mild ptosis) all went well which is part of his chromosome 18p deletion syndrome

Mandy Legge really need some advice, midwives have attempted to put logans feeding tube in 4 times now and still no luck if it takes them so long how am i suppose to b able to do it

Suzette Villalobos I just recieved my welcome pack. So glad to finally find some answers to my sons 15q13.3 microdeletion. Anyone else out there have children with the same disorder? I would love to share stories.

Maz One of our families stories......thanks Donna! and Faith of course xx
Source: www.birminghammail.net
TO HER family, little Faith Solomon is one in a million, but the youngster is also one in a small group of children with a chromosome disorder which affects just a handful of people worldwide.

Maz
CCNUK is gathering evidence to support the need for key working, and a big part of that process is collecting case studies from our members. Thank you to all those members who have already submitted a case study to us! If you have not, there is still time for you to make your contribution. Perhaps you are a parent or y...oung disabled person who has experienced life both without and with a key worker, and would like to tell us what impact a key worker has had in your life. Perhaps you have never had a key worker and would like to tell your story and how you think things could have been better with key worker support in place. You could be a key worker and like to share your experience of the role, or a service manager that could contribute a case study on how your service was established. Are you a practitioner dealing with families with disabled children, and have an anonymised case in mind where a key worker did, or could, completely change a family’s life for the better?If you would like to tell us your key worker story, and help support CCNUK in proving the importance of key working for families across the UK, then please contact us today. You can send your written case study by email to admin@ccnuk.org.uk or by post to the address below. You can also contact the York office on 01904 567303 to arrange a time to talk through your story with our Admin team, who would be happy to scribe this for you if that would be more convenient. Please also forward this request to any other parties you feel may wish to contribute.We look forward to hearing from you.Kind regards,Sharon White, Admin ManagerCare Co-ordination Network UKTower HouseFishergateYork YO10 4UAt: 01904 567303 m: 07947 910456 f: 01904 567334e: sharon.white@ccnuk.org.uk w: www.ccnuk.org.ukworking with others to promote key working for disabled children, young people and their familiesRead more
Source: www.ccnuk.org.uk

Mandy Legge well first specialist appointment was today, getting admitted back into hospital tomorrow, have to start tube feeding as of tomorrow, would love to talk to other families on this please feel free to add me as friend

Kristen Hampton So glad that we found this site! We just registered today and look forward to the information. So glad to find out there are lots of other families out there with similar situations.

Maz
Source: www.the-specials.com
The Specials is an online docu-soap series following the lives of a house of young adults with learning difficulties.


















